Thomas Talks About His Epilepsy Helmet
A very active Thomas talking about his Epilepsy Seizure Helmet, my intentions with this video are to show other parents what a typical “Scrum type” Epilepsy Helmet looks like. And also how Tom feels about his helmet. I have written about Seizure Helmets on numerous occasions “Epilepsy Helmets – Part 1” and “Epilepsy Helmets – Part 2“. Have a read of these as well they will give you more information about this type of epilepsy helmet, and what to watch out for.
Thomas suffers from Atonic seizures and has injured himself on multiple occasions. This helmet helps prevent serious injury, Thomas has been wearing one since he was 3 ish. He attends a mainstream school and the other children treat his helmet as part of who he is, for now… My worries are that this will change as he grows older, but for now all is well.
If you missed the video of Thomas talking about his VNS you can also see that here.
Thanks for watching.. My apologies for the “amature” camera work as usual. Its difficult to film and keep a hyper active 5 year old sitting still (as you can see.)
Andy & Tom.
Further Reading about seizure helmets can be found on the following sites:
http://www.bhsi.org/special.htm
Hi Andy & Tom, I just showed Jayne your video. She said it opened her eyes to youngsters who like her have to wear a helmet. In someways she feels lucky that she didnt need a helmet until 39 years old. Jayne has Tonic & Atonic & Complex Partial seizures. The results of not wearing a helmet include a Brain Haemorrage, and the back of her head being mushy from all the wounds. She had lost hair at the point of injury but it seems to be growing back and now healed due to the helmet. Apart from the people at Chalfont St Peter when Jayne stayed there, we rarely see epilepsy helmets out in public.
At first Jayne didnt want to wear it out in the streets, but I kept telling her I love her and she is a pioneer, one day all people with uncontrolled Epilepsy will feel free to wear a helmet when they are going through a bad spell. Jayne is proud of her helmet now and realises that people who stare dont understand why she wears it till she tells them. Jayne tells everybody now, she also tells them we have been married for 20 years. I am so proud of Jayne she is so fully self expressed. I believe Jayne & Tom are pioneers.
J & J
Hi John.
I agree with you, we dont see many people wearing them out in public, Tom has always wore his, (Not had much choice, ive put it on him and he’s still young). I am hopeful that one day people will feel comfortable wearing them. And also that the views of the general public change.
Thats my ultimate aim.
Andy.
Hi, my son Dylan aged 7yrs has the same Helmut too, which we tend to use that one out side in open space. This is because of the open area of the helmit. Dylan managed to fall and hit his head on a corner skirting board and cut his head. We use one that is covered in, inside the home called Protect cap. My Helmut was given to me by another mum on the net who read my story on my Dylan cutting his head. My house has so many sharp edges that i feel its safer. Another thing I will add as well is with the open cap, you can ask them to build it up at the front so to stop them from hitting their nose. That what i was advised by a different doctor the other day. I hope this was usefulxx Janie
[...] added a few photos on the page so you get to see what me and Tom look like unless you have seen our videos (I have more hair [...]
[...] he has to wear a seizure helmet to protect himself from serious injury. He has spoken about his epilepsy helmet on one of my other [...]