Epilepsy and Home Fire Safety

Epilepsy and Home Fire Safety

Living with a medical condition can be extremely frightening. If you are at increased risk of seizures for example, it is impossible to know when one may occur. People with epilepsy may be left immobile in an emergency – petrifying if there is nobody else around. (more…) Share and Enjoy:

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Me, Myself and Epilepsy

Me, Myself and Epilepsy

It’s safe to say I have some experience with epilepsy. For the last two and half years I have been employed as a one to one carer for an epileptic adult, however most of my experience with epilepsy comes from being an epileptic myself. I had my first seizure at the age of seven months. I’ll tell you the way my mum described it. Bonfire night 1982. My grandparents...

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National Epilepsy Week – 19th – 25th May

National Epilepsy Week – 19th – 25th May

Readers of this blog will be only too aware that 19-25 May is National Epilepsy Week. As a charity, Young Epilepsy is undertaking a huge number of activities to raise awareness of the condition and the work we do. We’re also seeking to raise funds so that we can continue to support the 112,000 children, teenagers and young people living with epilepsy in the...

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Survey about perceptions of epilepsy

Survey about perceptions of epilepsy

Hello all, I have been contacted by PIP Health who would like UK Epilepsy’s help in promoting some research into “Perceptions of epilepsy” they have put a short survey together. Specialist healthcare market researchers, PIP Health, would like to ask you to take part in a survey they are conducting to raise awareness of epilepsy in the general...

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Epilepsy Champion – 2013 Runner UP!!!

Epilepsy Champion – 2013 Runner UP!!!

As I sat watching my Twitter feed tonight keeping tabs on the Young Epilepsy Champions Award ceremony (sadly I couldn’t make it) I got a pleasant surprise. I was runner up in my category!!!! (26 years and over – individual) This was totally unexpected! A massive thank you to young epilepsy for putting the awards on, another thank you to the anonymous...

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Epilepsy Champions Awards 2013 Nominee

Epilepsy Champions Awards 2013 Nominee

Just a quick post tonight, I have been given a great honor by being nominated for an Epilepsy Champions 2013 award!! I am gob smacked! I have been nominated for “For setting up and running ukepilepsy.com website to provide information and support to anyone affected by epilepsy and for his work as a media volunteer.” I have been entered into the “26...

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Piracetam Shows Promise for Progressive Myoclonus Epilepsy

Myoclonus epilepsy can be a hard condition to deal with. The condition causes brief jerks in all or specific parts of the body but is mostly common in the limbs and facial muscles. These jerks and involuntary movements can be so bad that they often trigger falls. With myoclonus epilepsy seizures and loss of consciousness don’t always happen but these dangerous...

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